Wrexham Glyndwr University helps to raise awareness of disability and rare diseases
20 January 2017
A UNIVERSITY has thrown its weight behind an organisation raising awareness of disability and rare diseases.
Wrexham Glyndwr University was invited to the Houses of Parliament by Delyn MP David Hanson to support the Same but Different charity’s week-long arts exhibition.
Bid writer Rachel Lacey - as part of her role working with third sector organisations – has collaborated with photographer and the appeal’s founder Ceridwen Hughes (pictured left with David Hanson MP) to apply for Lottery funding to increase awareness of the foundation, which aims to break down barriers for families affected by rare diseases.
Ceridwen launched Same but Different as her son has a little-known condition called Moebius. From the moment Isaac was born she recognised that people made assumptions about him because of the way he looked and behaved.
Having met many parents over the years who felt the same frustrations, she decided to use her skills to tell the story of the people behind the conditions and counteract prejudice.
During the visit, Rachel met with Ian Lucas, MP for Wrexham, and Clwyd South MP Susan Elan Jones to publicise the project.
She said: “Same but Different, under Ceri’s leadership, has harnessed the arts to raise awareness of disability and counteract prejudice.
“This is sadly all too often an overlooked subject matter within the world of disabilities and it is so important that Ceri’s charity can continue to go from strength to strength. The event was a small stepping stone along her journey in increasing the profile of Same but Different.”
Ceridwen added: “The exhibition allowed us to give a voice to people who often feel isolated and misunderstood.
“We aim to break down barriers and allow people to learn more about rare diseases and more importantly the people behind the condition. As a parent of a child with an extremely rare condition I understand how hard it can be to explain how far reaching the impact can be. With one in 17 people affected the impact has far reaching affects in communities.”